I'm Rob from EURORDIS. I'd just like to thank all of the Moebius syndrome groups that contributed to the creation of this Community. We hope that the human translation offered here can help to create some new links across groups working for Moebius syndrome worldwide.
If you ever run into a problem, or have a question, please contact Allie or I. We are here to support.
Best,
Rob
robert.pleticha@eurordis.org