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Moebius syndrome is a rare neurological condition resulting in facial paralysis that may include respiratory, eye, limb, speech, hearing and other disorders.

2010 Moebius Syndrome Conference Slideshow

Written by Moebius Syndrome Foundation, published 5 months ago.

A slideshow compiled by the Moebius Syndrome Foundation.

Written by Moebius Syndrome Foundation, published 5 months ago.

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Moebius syndrome Recent Activity

2012 Moebius Syndrome Foundation Spring Newsletter
document, published about 1 month ago
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The Moebius Syndrome News is published three times a year.
Moebius Syndrome Aware Day III January 24th 2013
topic, published about 1 month ago
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Planning for Moebius Syndrome Awareness Day 2013 is under way. Join us on facebook to learn more! https://www.facebook.com/events/268350593242302/?notif_t=plan_user_joined
Calendars
topic, published about 1 month ago
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We have some 2012 Moebius Syndrome Calendars that we are giving away for free. If you would like one send us an email with your name and address in it to manyfacesofmoebiussyndrome@yahoo.com 1 Calendar per person.
Six-year-old Nottingham girl Mia Blackwell cannot smile
news, published 2 months ago
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Mia Blackwell, from Bilborough in Nottingham, is one of 124 people in the UK with the rare Moebius Syndrome, which causes facial paralysis.
Special surgery brings a smile to girl’s face
news, published 2 months ago
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Kasey Wessel of Otsego is one very determined 5-year-old. She has the extremely rare Möebius syndrome, which paralyzes a person’s face, not allowing them to smile, frown or blink. Yet her courage and determination paid off last year when she smiled for the first time after undergoin...
Conference Fundrasing
topic, published 2 months ago
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Submitted by Monica Woodall
Our daughter Madison was born on June 6, 1999 with Moebius syndrome. In addition to feeding issues, she had bilateral club foot. At three months old, Madison underwent the Nissen Fundiplication procedure to address reflux and had a G-tube placed for supplemental f...
Future plans
topic, published 3 months ago
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After the success of Moebius Syndrome Awareness Day, what are your plans for Rare Disease Day?
Need any ideas?
Check here: http://eepurl.com/jAD0f
Local Man Reaches Out To Others With Rare Disorder
topic, published 3 months ago
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http://blogs.fredericksburg.com/healthyliving/2012/02/17/local-man-reaches-out-to-others-with-rare-disorder/
Original newspaper article:
http://eurordiscloud.s3.amazonaws.com/newtim.jpg
http://eurordiscloud.s3.amazonaws.com/newkatie.jpg
10th Moebius Syndrome Conference in Philadelphia
topic, published 3 months ago
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Registration is now open for the July 13-15 conference
http://www.regonline.com/builder/site/Default.aspx?EventID=943924
A Smile from the Heart
news, published 3 months ago
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Ryan's mother has found herself getting involved with other moms around the country who have children with Moebius. She, like any parent, hopes this baby's childhood years will be spared the cruel comments that come with being different.