Hereditary Spastic Paraplegia community

Hereditary Spastic Paraplegia (HSP) is a group of rare, inherited neurological disorders. Their primary symptoms are progressive spasticity and weakness of the leg and hip muscles. The condition is characterized by insidiously progressive lower extremity weakness and spasticity.

My Son's Story

Written by TinaGMc, published 6 months ago.

My son Sam was just diagnosed with HSP type 11. We live in northern California near San Francisco and are looking for information and support.

Written by TinaGMc, published 6 months ago.

2 comments for «My Son's Story»

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  • fernando
    fernando | published 4 months ago | Originally written in Spanish

    Hello Tina,
    If you live in the USA, I recommend you contact the HSP US Foundation, www.sp-foundation.org on your page will find information (in English).
    You can also see the website of the Spainish group at www.aepef.org where you will find information in Spanish.
    Greetings from Cádiz
    Fernando

  • abernie182
    abernie182 | published 4 months ago | Originally written in English

    Tina,

    Contact Dr. John Fink at the University of Michigan. www.umich.edu/~neurosci/faculty/jkfink.htm

    He is the foremost expert in early onset HSP. Specifically, SPG3A like my little girl has.

    Good luck. It's hard at first but it does get easier.

    Regards,
    Allen Bernard
    614-418-0586

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