A doctor in Montreal

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  engyawni | published 3 months ago | Originally written in English A doctor in Montreal

  I need your help, I am planning to immigrate to Montreal this summer and I have two children (24 and 18) diagnosed with FMF. I need an address of doctor or clinic or hospital that my children can follow regularly with them specially when my doctor, here in Cairo, told me that my son might need to increase the dose of colchicine if he couldn’t adjust well with the cold Winter of Montreal.

  Appreciate if you can give me your advice.
  10 replies to the topic — see all replies

  • 
    toyre published 3 months ago | Originally written in English

    hello, contact this association to montreal
    www.fmfmontreal.org/
  • 
    engyawni published 3 months ago | Originally written in English

    Thanks a lot, I will sure do.
  • 
    toyre published 3 months ago | Originally written in English

    Hi Engy,
    If you are diagnosed FMF, you must take for life colchicine to prevent AA amyloidosis.
    I suggest you visit the English website AFFMF, all the information you need are above
    affmf.jimdo.com/accueil/the-affmf-in-english/
    Jean toyre
    Moderator FMF France for the Community Familial Mediterranean Fever
  • 
    engyawni published 3 months ago | Originally written in English

    Even if I am not symptomatic, I mean my gene test revealed that myself, my daugther and my son are homozygous for M6941 but they have attacks of fever and abdomen pains while I don't. They take daily dose of 1mg colchicine but I don't. Do you think I should too ?
  • 
    toyre published 3 months ago | Originally written in English

    AA amyloidosis is a rare disease, which means that there is still no drug on the market for care, the only protection is the regular daily colchicine and at life.

    This is the message we convey to the patients with FMF, for against the determination must be made by a doctor who knows the FMF.

    Colchicine is the only drug that has a real substantive action on the FMF.

    Once the diagnosis of the FMF is established, colchicine is taken every day and life. It helps offset the immune dysregulation, thereby reducing the frequency and intensity of attacks to make them disappear completely for about 50% of patients. For others, the symptoms (fever and pain) persist but are generally mitigated.

    Specifically, colchicine should be taken daily for the prevention of the occurrence of complications; This is not a drug of the crisis itself. In any case, she removed the risk of renal Amyloidosis . If Amyloidosis is already present, colchicine may be prescribed order to stop or to slow the evolution. The exact mode of action is not really known to date. Different assumptions are circulating but none of the theories has been proven 100%.

    Colchicine is a drug which has bad reputation because there is a deadly risk of overdose. In France, the prescribed doses are well below the toxic dose. The maximum dose prescribed in France is 2.5 mg/day including in children (safety of colchicine and the fact that it does not interfere with the growth has been shown, there is no impact related to the weight). Long periods of testing are sometimes necessary to find a good dosage which reduces crises and does not side effect.
    
    Side effects
    At the beginning of treatment, diarrhea is difficult to avoid 1 or 2 months and part of adaptation to the treatment.
    In contrast, signs can prevent overdose: continuous diarrhea that outbreak after a normal period, decreased muscular strength without pain (for example, unable to move from the squatting position standing). In this case, a consultation is needed quickly.
  • 
    marwareyad published 3 months ago | Originally written in English

    hi engy
    kindly i would like to ask you about your doctor in cairo ,as i am having fmf and was planning to travel to follow up with dr in france as i can't find good one in egypt ,so can you help me if your dr in cairo is good one ,thank you
  • 
    engyawni published 3 months ago | Originally written in English

    Of course Marwa the genius dr who discovered my son's condition name is dr Hady Gobran but he immigrated to Canada, but am following now with a very good dr as well his name is dr Ehab Sameeh he goes to El hayat hospital Saturday 5-7 pm Tuesday 12-2 pm and to Anglo hospital same days 9-11 am . His clinic in 44 talat harb str. Phone 25784538, his mobile 0101452060. He will ask you to do some tests one of them Serum Amyloid A which is very important to monitor amyloidosis . This test is sent to Germany as labs don't do it here. Best of luck and Plz don't hesitate to ask anything If I can help.
  • 
    kelticqueen published 3 months ago | Originally written in English

    Hello Engy:

    Here is the name of a specialist in Montreal I received from the AFFMF:

    From:
    "Déborah Boujenah" <affmf@orange.fr>
    View contact details
    To:
    "'kat murphy'" <chickwithmakeup@yahoo.com>

    Hello,

    We are in Paris but I give you the address and phone number of a specialist in Canada.

    By hoping that this doctor can bring you all the help which you need.

    Very cordially.

    I remain at your disposal.
    

    
    

    
    

    
    

    
    

    
    

    
    

    
    

    
    

    
    

    
    

    DR SLIM Rima

    - GENETICS - Molecular Biology

    rima.slim@muhc.mcgill.ca

    514 934 1934 ext 445

    Human Genetics & Obstetrics Gynecology

    McGill University Healthy Centre

    1650 Cedar avenue, L12-132

    Montreal

    H3G 1A4

    CANADA

    Déborah Boujenah

    Bureau de l'AFFMF

    20 Rue de Madrid

    75008 Paris

    Tel : 01 48 74 41 71

    www.affmf.org

    Hope it helps U:))

    Kat
  • 
    engyawni published 3 months ago | Originally written in English

    Thanks a lot, this help for sure as I didn't get much info so far.
  • 
    kelticqueen published 3 months ago | Originally written in English

    You are welcome! I did post this on the Yahoo Support group but long after you had asked the question so I guess you did not see it. I am wondering where in Canada this Dr. Hady Gobran is living?? I guess not in Montreal??

    I emailed Dr. Slim for my own FMF diagnosis but did not receive an answer. It seems he is an OB-GYN specialist so I am not sure if he will be much help. I do have an appointment in Montreal at the Montreal General Hospital Human Genetics Division to be genetically tested for FMF in April. Perhaps they can help U? Would you like the contact info them or probably you already have it??
    thx
    Kat