Familial Mediterranean Fever community

Here's a selection of information from patients & professionals to better understand Familial Mediterranean Fever.

Familial Mediterranean Fever resources

Familial Mediterranean Fever Frequently Asked Questions

Here are some of the most frequently asked questions and their answers:

If you are a patient or carer with a question about living with FMF, about treatments, or other relevant information please email your question to FAQ@rarediseasecommunities.org and we will put it to the specialists who have agreed to answer your questions from time to time.

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What are the symptoms of FMF?

FMF most often occurs before 10 years old and usually at about 2, 3 years old. It can sometimes be during the first year of life and, in exceptional cases, in the first weeks of life. FMF can also ...

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What is FMF?

FMF belongs to the family of hereditary autoinflammatory diseases. These diseases are mainly determined by a genetic defect, causing immune system dysfunction. In people suffering from hereditary a...

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Familial Mediterranean Fever Patient Groups

These are patient organisations that have experience and expertise in Familial Mediterranean Fever. They are supporters of this website. Contact them for more information on their activities.

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  • AIFP

    Associazione Italiana "Febbri Periodiche" Nel 2006 nasce l'AIFP, "Associazione Italiana Febbri Periodiche", che si prefigge di portare questo gruppo di malattie rare(le febbri periodiche o sindromi autoinfiammatorie), all'attenzione dei medici, attraverso la propria attività di sensibilizzazione. L'Associazione Italiana “Febbri Periodiche", è stata costituita nel 2006. Si prefigge di portare questo gruppo di malattie rare (le febbri periodiche o sindromi autoinfiammatorie), all'attenzione dei medici, attraverso la propria attività di sensibilizzazione. Tra gli scopi vi sono quelli di stabilire una rete di comunicazione e supporto tra i pazienti e le loro famiglie. Difendere i diritti civili, la dignità personale e di cittadino delle persone affette da Febbri Periodiche. Aiutare gli ammalati ad ottenere i servizi sociali di previdenza e di assistenza cui hanno diritto per legge. Curare il collegamento con le Associazioni straniere ed internazionali che hanno finalità analoghe e con tutte le Associazioni che si occupano di malattie che hanno sintomi o danni similari, per scambiare con esse informazioni utili relative alle attività svolte sia mediche che sociali ed adoperarsi per l'applicazione delle leggi esistenti e per la proposizione di nuove leggi più rispondenti alle esigenze dei malati affetti da queste patologie.

    Contact AIFP

  • Stichting FMF-Community Nederland

    The Dutch FMF-Community is a non-profit patient association providing information and support and is dedicated to promoting awareness, proper diagnosis, health care and treatment and improved care for patients with FMF (Familial Mediterranean Fever) and other auto-inflammatory syndromes.

    Contact Stichting FMF-Community Nederland

  • AFFMF

    L’Association Française de la Fièvre Méditerranéenne Familiale et des autres Fièvres Récurrentes Héréditaires a pour but de concourir à la protection de la santé publique en participant à la prophylaxie des maladies rares que sont la maladie périodique et les autres fièvres récurrentes héréditaires selon les axes suivants: -Développer l’information sur ces maladies rares et plus précisément informer, orienter les malades et leurs familles répartis dans toute la France, partager les expériences du quotidien, les informations médicales, se communiquer des informations pratiques et proposer des accès directs aux informations (internet, conférences, publications, ...), travailler en partenariat avec les collectifs d’association, entretenir des échanges avec les associations étrangères des fièvres récurrentes héréditaires. -Aider à l’amélioration du diagnostic et de la prise en charge précoce des malades. Participer à la reconnaissance de ces maladies : -o auprès des services hospitaliers, des médecins, -o auprès des organismes sociaux pour améliorer la prise en charge, -o auprès des pouvoirs publics. -Contribuer à la recherche sur ces maladies en vue de leur traitement et de leur guérison. Présentation de l’association en clip vidéo: http://www.youtube.com/watch?v=ROZ31j0JyLw&feature=player_embedded

    Contact AFFMF

  • FMF Montreal

    FMF Montreal is an initiative in collaboration with local medical genetics services with a three-fold purpose: 1. To facilitate access to information, diagnosis,treatment,and support for people who are affected by Familial Mediterranean Fever (FMF) 2. To increase awareness about FMF in communities most commonly affected by it, primarily of Mediterranean origin 3. To further the medical community’s understanding of FMF with respect to symptoms presentation, diagnosis, and patient care.

    Contact FMF Montreal

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Familial Mediterranean Fever Documents

Resources, documents and detailed informations on Familial Mediterranean Fever. In this section you can download brochures, ask for printed documents or find useful links.

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Familial Mediterranean Fever Articles

Most recent articles:

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FMF Signs and Symptoms Chart

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Orphanet: Familial Mediterranean Fever (2004)

Familial Mediterranean Fever (FMF) manifests as short febrile episodes occurring at variable intervals, with intermittent abdominal, thoracic, joint and/or cutaneous pain, and the possible developm...

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Quali sono i sintomi della FMF

Esordio. I primi sintomi di malattia compaiono nella prima decade di vita nel 50% circa dei casi e solo il 5% dei pazienti sviluppa la malattia dopo il trentesimo anno di età.

L'inci...

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Clinical Symptoms: Attacks

90% of all patients have their first attack before they are 20 years old. All develop over 2-4 hours and last anytime between 6 hours and 4 days, unless you go untreated for years and then the dise...

Tags: Managing attacks

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Familial Mediterranean Fever Events

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  • May 2012

  • 6th European Conference on Rare Diseases & Orphan Products (ECRD 2012)

    From 23 to 25 May 2012

    MCE Conference Centre in Brussels, Belgium

    More info

  • June 2012

  • European Human Genetics Conference 2012

    From 23 to 26 June 2012

    Its aims are to promote research in basic and applied human and medical genetics, to ensure high standards in clinical practice and to facilitate contacts between all persons who share these aims, particularly those working in Europe. The Society will encourage and seek to integrate research and its translation into clinical benefits and professional and public education in all areas of human genetics.

    More info

  • November 2012

  • 62nd Annual Meeting of the American Society of Human Genetics (ASHG)

    From 6 to 9 November 2012

    "We have 24 invited slots available and anticipate receiving over 120 proposals. We encourage you to provide as much information as possible in order to assist the Program Committee in their decision making. The ASHG 2012 Program Committee encourages the submission of debate or panel style sessions on thought-provoking or controversial topics."

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Familial Mediterranean Fever community news

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