Familial Mediterranean Fever community

Familial Mediterranean Fever (FMF) is a hereditary autoinflammatory disorder.

From Basepairs to Bedside: Adventures in the Genomics of Inflammation

Written by Dr. Dan Kastner, published about 1 year ago.

 

Dr. Kastner on... "finding the gene for Familial Mediterranean Fever, Kastner says, "This was back at that wonderful time, the dawn of the Human Genome Project, when with positional cloning—that method in which if you could recruit a group of families, if you knew it was a single gene disease—you could discover the gene, even if you didn't know anything about it. Seeing the dramatic inflammatory phenotype...I thought: That's for me!...The adventure was on." "

Find the The National Institutes of Health YouTube channel here. 

Written by Dr. Dan Kastner, published about 1 year ago.

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Familial Mediterranean Fever Recent Activity

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    Alopecia areata and colchicine
    topic, published 22 days ago

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    Dear friends, I would like to know if someone of you, is having alopecia areata problems (NOT simple alopecia/hair loss), caused by colchicine treatment.
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    fmf patient from Argentina
    topic, published about 1 month ago

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    Hello, my name is Melisa I'm 18 years old and I'm from Argentina. I was diagnosed FMF a year ago. Here in Argentina there is no doctor treating this desease. I sent the studies to Germany and there I was diagnosed the illness. Do you know any doctor in Argentina or any cuontry that I could contac...

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    Pregnancy with FMF
    topic, published about 1 month ago

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    Hi my name is iris and I was born in Israel,I live in NY for the past 10 years and I have fmf since I born due to the family history. I am currently 5 months pregnant with my first baby. All the years here in America my fmf was stable and control since I got pregnant my fmf condition become worse...

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    FMF Meeting in Israel
    topic, published 2 months ago

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    The AFFMF (French FMF Association) is organizing a meeting in Israel this May with some of the top FMF experts in the world.

    Check out their plans here:
    http://bit.ly/GLHwvc
    http://bit.ly/GPd01Z

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    Evolution of AFFMF
    topic, published 2 months ago

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    In response to numerous requests, the AFFMF (French Association of Familial Mediterranean Fever) has developed on its website pages in English,
    "The AFFMF in English": http://affmf.jimdo.com/accueil/the-affmf-in-english/
    "US News": http://affmf.jimdo.com/accueil/the-affmf-in-english/us-news/
    ...

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    A doctor in Montreal
    topic, published 3 months ago

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    I need your help, I am planning to immigrate to Montreal this summer and I have two children (24 and 18) diagnosed with FMF. I need an address of doctor or clinic or hospital that my children can follow regularly with them specially when my doctor, here in Cairo, told me that my son might need to...

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    Colchicine Access in the USA
    topic, published 3 months ago

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    Are you a United States FMF patient having trouble with accessing a suitable brand of Colchicine? We would like to hear from you, please message me here or at robert.pleticha@eurordis.org

  • -

    Finding a doctor
    topic, published 3 months ago

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    What specialists are the best for FMF? I have an internist and have also gone to a rumatologist, neither has any idea what to do or how to help.

  • -

    Source for colchicine
    topic, published 3 months ago

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    I started taking Colcrys about Nov. 2010. For the first 2 months I thought it was a miracle drug---then it was all downhill from there. I discontinued taking it 1 week ago. Although it controlled pain to a degree, the side effects are bad. It is very dehydrating---I lost a lot of weight---just s...

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    Colchicine and Children
    topic, published 3 months ago

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    Hi. I am the mother of 2 children with FMF. Our son was diagnosed at 7 yrs old, and prescribed Colchicine along with Phenobarbitol (to control the side effects of Colchicine). The doctor started him on a dosage of .6 mg and to increase at intervals. We noticed that when he began the medicatio...