Epidermolysis Bullosa Recent Activity

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  pansements entre les doigts
  topic, published 15 days ago

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  Thank you Butterfly, yes we can speak english, yes if you can show me some pictures, , it should be interesting, I never did that before, but now the doctor says it is very important because slowly my fingers become shorter .. merci beaucoup ,

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  throat blisters
  topic, published about 1 month ago

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  i need somebody's help immediately. i need help on blistering in the throat that comes with eb.My girlfriend has severe blistering in her throat and has not eaten in apporixamtely 3 weeks. She can only drink cold liquids on occasion, and we are lucky to get those down on a good day. She has lost ...

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  dressings between the fingers of the hands
  topic, published about 1 month ago

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  hello, I still have not found what I can put between the fingers of my hand at night to prevent the fusion of the fingers. Small gauze compresses or silicone finger separators all fell during the night, has someone found something easy and effective? thank you!

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  Recently published articles from Debra International
  topic, published about 1 month ago

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  Japan: Bone marrow cells approach to wound treatment
  http://www.debra-international.org/fileadmin/editor/docs/PNAS_paper_pdf.pdf'

  Supporting information
  http://www.debra-international.org/fileadmin/editor/docs/PNAS_paper_supplementary_info_pdf.pdf

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  EB wounds offensive to Facebook?
  topic, published 2 months ago

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  Blog about a mother who got her Facebook account suspended for posting pictures of her son's everyday life:

  http://blog.ebinfoworld.com/?p=340

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  medical marijuana and EB simplex
  topic, published 4 months ago

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  I have simplex EB and I am interested in medical marijuana for pain treatment and I am curious if anyone has any insight.

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  stuck on bandages
  topic, published 5 months ago

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  I would like to recommend all EB patients to use the Niltac spray, if bandages or similar things has been stuck on skin unintentionally or intentionally (e.g.after an emergency surgery).

  Niltac is a silicon spray and it removes bandages fast and easily. I just had a member of Debra Germany wh...

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  DebRA Mexico Opening Ceremony and Christmas party (ES)
  document, published 6 months ago

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  November 25-26th, 2011

  A sampling of pictures of the opening ceremony and Christmas celebration from the DebRA group of Mexico.

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  Last day of International EB Awareness week is today...
  topic, published 7 months ago

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  This year saw even more countries participate with activities: http://www.mywalkamile.wildapricot.org/

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  International Epidermolysis Bullosa Awareness Week Announcement
  document, published 9 months ago

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  IEBAW takes place October 25-31 each year

  Read this announcement for more details on how to get involved