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Hello,
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My name is Mary Anne Meskis. I am the Vice-President of the Dravet Syndrome Foundation based in the US, www.dravetfoundation.org. My youngest son, Elliot has Dravet syndrome.
I am happy to share our experience in living with Dravet syndrome and look forward to speaking with other families. The Dravet Syndrome Foundation also has an active support group on FaceBook with almost 600 members worldwide. (www.facebook.com/#!/groups/117762871617179/)
-Mary Anne
maryanne.m@dravetfoundation.org-
lynne published 4 months ago | Originally written in EnglishMy son Harrys also got Dravet Syndrome. Was diagnosed at 8 months old!
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