Delayed release (DR) cysteamine (RP103)...

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  robpleticha | Cystagon | published 10 months ago | Originally written in English Delayed release (DR) cysteamine (RP103)...

  The results of the Phase III trial seem to be positive (bit.ly/ojOgaG), what does this mean to patients? When can patients realistically expect this new drug to be approved by the drug regulatory agencies?
  8 replies to the topic — see all replies

  • 
    marjo1474 published 8 months ago | Originally written in French

    Hello,
    My daughter, Emilie has been taking CYSTAGON since she was 8 months old.
  • 
    jurian published 8 months ago | Originally written in French

    I have taken CYSTAGON for a long time, but now I use RP 103.
    RP 103 is in Phase 3 of the clinical trial.
  • 
    marjo1474 published 7 months ago | Originally written in French

    I heard about that et I think it's awesome, and how is it going by the way???
    and for you, what is changing ?

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  • 
    marjo1474 published 7 months ago | Originally written in French

    j'en aie entendu parler et je trouve ca genial et sinon comment cela ce passe t'il???
    et pour toi que change t'il??
  • 
    jurian published 7 months ago | Originally written in English

    je vais bien en ce moment. Je nécessaire moins souvent des comprimés à avaler qu'avec le cystagon, mais j'ai avec le Rp 103 des mêmes plaintes.

    je ne suis pas transplanté. J'espère c' il ne vient pas encore.
    vous Habitez où? et comment va ta fille?
  • 
    marjo1474 published 7 months ago | Originally written in French

    Good evening,
    It is indeed much better to use less drugs.
    Ma daughter is all-right, but it is sometimes not so easy to swallow all these medicine, and she's tired for the moment and a deposit in her kidney but it's quite OK beside that ;I live in Belgium next to the Charleroi area and you?

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  • 
    jurian published 7 months ago | Originally written in French

    Bonsoir.

    Vivian et moi j'habite à Angeren à côté de la Nijmegen en Pays-Bas.

    je suis fatiguée ce soir et les reins ont 55% de moi. d'avaler est non probleme pour moi.
    Tu connais Elena Levtchenko? www.nephceurope.eu/index.php/medical-advis...
    elle était ma médecin. elle travaille à leuven en Belgique maintenant. elle est une prof de cystinose

    au revoir ( je vais dormir maintenant :D)
  • 
    marjo1474 published 7 months ago | Originally written in French

    hello,
    Emilie has more muscle mass, so she get tired quickly and often has pain in the limbs; I do not know her personnally; Emily is followed by Dr. Rangelowf Nadèje, she worked at the Queen Fabiola (Hospital for children) Brussels

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