Here's a selection of information from patients & professionals to better understand CAPS .

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All CAPS FAQs

What is FCAS?

Familial cold autoinflammatory syndrome (FCAS), also known as familial cold urticaria, is a rare, inherited inflammatory disorder characterized by intermittent episodes of rash, fever, joint pain a...

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What is NOMID?

Neonatal-onset multisystem inflammatory disease (NOMID), also known as chronic infantile neurologic cutaneous articular (CINCA) syndrome, is a rare, congenital, systemic, inflammatory condition dis...

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What is Muckle-Wells?

Muckle-Wells syndrome (MWS) is one of the cryopyrin associated periodic syndromes (CAPS) caused by mutations in the CIAS1/NLRP3 gene. These syndromes are characterized by fever, rash and joint pain...

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If you are a patient or carer with a question about living with CAPS, about treatments, or other relevant information please email your question to question.caps@rarediseasecommunities.org and we will put it to the specialists who have agreed to answer your questions from time to time.