Here's a selection of information from patients & professionals to better understand CAPS .
All CAPS Documents
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Muckle-Wells Syndrome
Full-text content from NORD encyclopedia of Rare disease explaining different aspects of Muckle-Wells
Author/Foundation: NORD
Year of publication: 2007, English
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Neonatal-onset Multisystem Inflammatory Disease
Full-text content from NORD encyclopedia of Rare disease explaining different aspects of NOMID
Author/Foundation: NORD
Year of publication: 2007, English
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Familial Cold Autoinflammatory Syndrome
Full-text content from NORD encyclopedia of Rare disease
Author/Foundation: NORD
Year of publication: 2007, English
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CAPS Patient Brochure
Information on CAPS from the NOMID Alliance
Author/Foundation: Karen Durrant, Dr. Raphaela Goldbach-Mansky, Dr. Hal Hoffman, Dr. Kieron Leslie, Dr. Ben Rubin
Year of publication: 2008, English
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French Regulatory Authority information on Canakinumab (Ilaris)
A report by the French Government regulator on Canakinumab (Ilaris).
Author/Foundation: Haute Autorité de Santé
Year of publication: 2010, French
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Cryopyrinopathies: update on pathogenesis and treatment
Article from the scientific review Nature in 2008 by 3 distinguished French specialists on clinical practises relating to CAPS
Author/Foundation: Bénédicte Neven, Anne-Marie Prieur and Pierre Quartier
Year of publication: 2008, English
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Critical appraisal of canakinumab in the treatment of CAPS patients
Results of an independent scientific study analysing the effects of the biologic treatment canakinumab on patients.
Author/Foundation: Ori Toker, Philip J Hashkes
Year of publication: 2010, English
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AMWS Patient Organization Brochure
In French language.
Author/Foundation: AMWS CINCA FCAS
Year of publication: 2010, French
