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Here's a selection of information from patients & professionals to better understand Behçet’s Syndrome .

Behçet’s Syndrome resources

Behçet’s Syndrome Frequently Asked Questions

Here are some of the most frequently asked questions and their answers:

Email any questions to: FAQ@rarediseasecommunities.org

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What is Behçet disease?

Behçet disease is an inflammatory condition that affects many parts of the body. The health problems associated with Behçet disease result from widespread inflammation of blood vessels (vasculitis)...

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How common is Behçet disease?

Behçet disease is most common in Mediterranean countries, the Middle East, Japan, and other parts of Asia. However, it has been found in populations worldwide.

The highest prevalence of Behçet d...

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Behçet’s Syndrome Patient Groups

These are patient organisations that have experience and expertise in Behçet’s Syndrome . They are supporters of this website. Contact them for more information on their activities.

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SIMBA Italy

Associazione Italiana Sindrome e Malattia di Behçet L'attività primaria di Simba Onlus è l' informazione e la diffusione della conoscenza inerente la malattia di Behcet, unitamente al sostegno ed alla difesa dei diritti dei pazienti e dei loro familiari attuata sia tramite i propri canali internet sia capillarmente attraverso i propri referenti regionali. Simba Onlus collabora a tal fine con tutti i centri di riferimento italiani, battendosi per ottenere una uniformità di trattamento ed una continuità terapeutica su tutto il territorio nazionale,incentivando la creazione di centri di riferimento nelle regioni che ne sono sprovviste e promuovendo la ricerca in campo medico,genetico e farmacologico. Simba Onlus lavora in sinergia con l' Istituto Superiore di Sanità presso cui è associazione accreditata, con la Consulta Nazionale delle malattie rare e localmente ,ove esistenti, prendendo parte ai tavoli di lavoro regionali dedicati alle malattie rare.
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Ass. Française de Behçet

L'Association Françaises de la Maladie de BEHCET, régie par la loi de 1901, à été créée par des malades afin de faire connaître et reconnaître la Maladie de Behçet par le corps médical et les administrations concernées. Afin aussi de sensibiliser l'opinion publique et de mobiliser la recherche. De soutenir informer et orienter les malades, ou médecins permettant ainsi de faciliter le diagnostic pas toujours évidents à établir. Aider et encourager la recherche, en créant des bourses pour la recherche médicale.
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As. Española de Behçet

NUESTROS OBJETIVOS -Promover la agrupación de todos los pacientes, familiares, profesionales e interesados para poder trabajar de forma coordinada en las posibles soluciones y facilitar el reconocimiento de la enfermedad. -Sensibilizar a la opinión pública de los problemas de identificación, diagnóstico y tratamiento de la Enfermedad de Behçet. -Facilitar la información sobre la enfermedad a los pacientes, familiares y profesionales con el objetivo de conocer mejor sus causas, sus manifestaciones y sus tratamientos, con especial énfasis en la correcta utilización del tratamiento farmacológico. -Potenciar todos los canales de información para los asociados con la finalidad de propiciar apoyo social, familiar, laboral, psicológico, médico y facilitar los canales de actuación en los casos graves. -Estimular y promover la investigación de la enfermedad de Behçet tanto a nivel nacional e internacional. -Cooperar con todas las identidades nacionales e internacionales que tengan una finalidad similar para conseguir la mejora de la calidad de vida de los enfermos y una futura curación.
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UK Behçet’s Syndrome Society

The Behçet’s Syndrome Society was formed in 1983 by Judith Buckle (1950-1997). Its main aims are: • To provide information and support for people with Behçet’s disease and for those who care for them. • To provide financial aid in hardship caused by Behçet’s disease. • To foster education, collaboration and networking in the medical and allied professions with an interest in Behçet’s disease. • To promote and assist with research into Behçet’s disease. • To promote the formation of patient support groups and awareness of this rare disease amongst the appropriate influential institutions, authorities and decision-making bodies, and to provide them with detailed information about Behçet’s disease.
Contact UK Behçet’s Syndrome Society
American Behcet's Disease Assoc.

The American Behcet's Disease Association's mission is to provide support and information to people with Behcet's Disease and their families and to educate the medical community about Behcet's Disease. Through education, support, research and fundraising, the ABDA is working to find a cure and promote awareness and understanding of Behcet's Disease.
Contact American Behcet's Disease Assoc.

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Behçet’s Syndrome Documents

Resources, documents and detailed informations on Behçet’s Syndrome . In this section you can download brochures, ask for printed documents or find useful links.

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New Insights in the Clinical Understanding of Behçet’s Disease

Behçet’s disease is a chronic relapsing multisystemic inflammatory disorder characterized by four major symptoms (oral aphthous ulcers, genital ulcers, skin lesions, and ocular lesions) and occasionally by five minor symptoms (arthritis, gastrointestinal ulcers, epididymitis, vascular lesions, and central nervous system symptoms). Although the etiology of Behçet’s disease is still unknown, there have been recent advances in immunopathogenic studies, genome-wide association studies, animal models, diagnostic markers, and new biological agents. These advances have improved the clinical understanding of Behçet’s disease and have enabled us to develop new treatment strategies for this intractable disease, which remains one of the leading causes of blindness.

Author/Foundation: Sung Bin Cho, Suhyun Cho, and Dongsik Bang

Year of publication: 2012, English

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Press release: UK Behçets Syndrome Centres of Excellence announced

Author/Foundation: UK Behcet's Syndrome Society

Year of publication: 2012, English

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An unusual case of meningitis

Case report of an individual with Neuro Behcet's disease From the Italian journal: Le Infezioni in Medicina, n. 1, 45-48, 2011

Author/Foundation: Paolo Gritti

Year of publication: 2011, English

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La malattia di Beçhet: aspetti storici e tematiche di trattamento per il futuro. (IT)

Centro regionale di riferimento per le Malattie Autoimmuni, Ospedale Careggi, Firenze.

Author/Foundation: Dott. Lorenzo Emmi, Dott. Danilo Squatrito, Dott. Enrico Beccastrini

Year of publication: 2011, Italian

Tags: Italiano

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SIMBA Uscita no. 3 settembre 2011 (IT)

Author/Foundation: SIMBA

Year of publication: 2011, Italian

Tags: Italiano

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Behçet’s Syndrome Articles

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Manifestations of Behçet's disease

Hypopyon iritis is among the most serious manifestations of ocular lesions in Behcet's disease. In reality it is not frequent and it is often difficult to reveal because it is hidden.

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Tags: Living with Behcet's

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LA ENFERMEDAD DE BEHÇET (ES)

Características

La enfermedad de Behcet se caracteriza por la inflamación de los vasos sanguíneos por lo que entra dentro del grupo de las vasculítis. A su vez se tr...

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Behçet’s Syndrome Events

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May 2012
6th European Conference on Rare Diseases & Orphan Products (ECRD 2012)

From 23 to 25 May 2012

MCE Conference Centre in Brussels, Belgium

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June 2012
European Human Genetics Conference 2012

From 23 to 26 June 2012

Its aims are to promote research in basic and applied human and medical genetics, to ensure high standards in clinical practice and to facilitate contacts between all persons who share these aims, particularly those working in Europe. The Society will encourage and seek to integrate research and its translation into clinical benefits and professional and public education in all areas of human genetics.

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July 2012
15th International Conference on Behçet's Disease

From 13 to 15 July 2012

On behalf of the Japanese Behçet's Disease Study Group supported by The Japanese Ministry of health, Labor and Welfare, it is our great pleasure to announce to you the 15th International Conference on Behçet's Disease. It will take place in Yokohama, Japan from July 13th to 15th, 2012 under the auspices of the International Society for Behçet's Disease.

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November 2012
62nd Annual Meeting of the American Society of Human Genetics (ASHG)

From 6 to 9 November 2012

"We have 24 invited slots available and anticipate receiving over 120 proposals. We encourage you to provide as much information as possible in order to assist the Program Committee in their decision making. The ASHG 2012 Program Committee encourages the submission of debate or panel style sessions on thought-provoking or controversial topics."

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