Share your video in support of Rare Disease Day!
Written by Linda Burke, published 4 months ago.
In partnership with NORD and Eurordis, the Foundation for Children with Atypical HUS announces the launch of its SOARING VOICEScampaign. A global rare disease awareness project for Rare Disease Day on February 29th, 2012, Soaring Voices also serves to highlight the new patient communities at www.rarediseasecommunities.org
This campaign will be promoted on multiple sites with interests in rare disease circles, offering a worldwide presence that provides Soaring Voices participants with strong global visibility. For non-profits, medical interests, or companies providing support or services to those in a variety of rare disease fields, Soaring Voices ties in directly with your target audiences.
The Soaring Voices project asks participants to create a video clip or slideshow that informs and uplifts …illustrating the theme “Alone we are rare, together we are strong” with an innovative and upbeat project that can showcase your organization’s message. On Rare Disease Day, videos or slideshows sent to NORD and Eurordis will be part of their Wednesday, February 29th upload to YouTube to honor and support rare disease patients and their families.
Your organization is invited to utilize your current media and outreach tools, add a component specifically related to rare diseases, and to post your slideshow or video with NORD and Eurordis. It’s easy to show your support of rare disease patients, families, medical and research staff, and the organizations that serve them. Simply add a message indicating your involvement with, or support for, rare disease patients or disease groups and include rare disease graphics in your organization’s video or slideshow.
Looking for networking opportunities? NORD and Eurordis encourage rare disease awareness through corporate, individual, or non-profit use of a variety of downloads at Rare Disease Day graphics. Capture the opportunity for your organization to be recognized as a rare disease Partner or Ambassador.
Join the Soaring Voices campaign for rare disease awareness. Contact Linda Burke, creator of the Soaring Voices project at Linda@atypicalhus.org or (207) 838-7772 for more information.
For more visit: http://atypicalhus.ning.com/profiles/blogs/share-your-video-in-support-of-rare-disease-day
NORD :http://rarediseaseday.us:80/
Eurordis: http://www.rarediseaseday.org:
Click on the poster to download.
Written by Linda Burke, published 4 months ago.
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