Alternating Hemiplegia Recent Activity

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  Evaluation of the annual meeting of AESHA 2012
  topic, published 7 days ago

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  As you know, the last May 5, 2012 we had the AESHA Annual Family Meeting.

  The organization is very satisfied with the way in which the meeting took place as we reached the objectives that we had proposed for ourselves. We commented the activities carried out by the association during the last ...

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  Sensation? Very good news? Announcement from the Board of the AHC Foundation
  topic, published 7 days ago

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  Dear all,

  I have excellent news.

  Today, the board of the AHC Foundation published an update on the AHCF Pepsi Grant Research, both on its own website and in the forum of the French organization afha (Yahoo Groups).

  According to the announcement, the genetic cause of AHC was discovered.
  ...

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  MEETING OF SPANISH FAMILIES ON MAY 5 IN BARCELONA
  topic, published 13 days ago

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  The annual meeting of AESHA families will be celebrated on May 5 at Hospital San Joan de Déu de Barcelona (Spain).

  The way the meeting was decided last year, we have been informing through our Web page, this year we are going to start our participation in the IBAHC research (project (Biobanco...

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  AHC registry and AHC biobank
  topic, published 17 days ago

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  Dear all,

  in Poland there is no AHC registry and no AHC biobank.
  May be some of our families would be interested to participate to a registry and a biobank such the I.B. AHC.

  Could anybody explain us the following questions:
  - how high are the costs of enrolment in a registry and a bioba...

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  Italian study of paroxysmal episodes in AHC - data collection extended
  topic, published about 1 month ago

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  Hello, dear parents and carer of AHC patients,

  as the Italian organization A.I.S.EA has announced, the duration of the data collection for above mentioned study has been extended ("Alternating Hemiplegia of Childhood: a study on paroxysmal episodes“). Registering is only possible until to June...

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  Scientific conference in San Francisco regarding the topic AHC on June 28th-29th 2012
  topic, published about 1 month ago

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  Hi everyone,

  on June 28th and 29th 2012 the American Organization ahcf (AHC Foundation) organizes a scientific meeting ( directly before the family reunion) for physicians and other professionals, dealing with AHC.
  For details please go to the ahcf website

  http://ahckids.org/foundation-updates...

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  Sunna is getting 6 years old
  topic, published about 1 month ago

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  Hi Sunna,

  You're a big girl. For your sixth birthday I wish you all the best - especially health, luck and only sunny days. Learn to make the best out of your life as quickly as possible. At the beginning it was so difficult for me. I feel better now that I've learned that.

  gosia21

  02/09/2012

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  Happy Easter!
  topic, published about 1 month ago

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  Apr. 7th 2012

  Happy Easter
  from Polish families to all the AHC families in the community

  ahc-pl

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  German article features AHC
  topic, published about 1 month ago

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  An article from “Bild” about Christian – an AHC Patient. Christian, from Berlin, is one of 30 people in Germany with "Alternating Hemiplegia"

  http://www.bild.de/ratgeber/gesund-fit/gesundheit/alternierende-hemiplegie-ahc-ihm-hilft-nur-schlaf-11634544.bild.html

  This article is in German. Us...

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  Irene from Spain is 6 years old !!!
  topic, published about 1 month ago

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  Hello Irene,

  my dad told me that today is your 6th birthday. I would like to wish you a very Happy Birthday! First and foremost, I wish you to be healthy - to enjoy lots of days without seizures. I also hope that you quickly learn to read and write and that you enjoy it and wish you many reasons...