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Hosted by trusted patient advocates, this is a place where rare disease patients can connect with others globally. Come in and learn more >

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  • Our Communities

    Our Communities

    Find an online community for your area of interest. Meet, interact and learn from your peers and medical experts. We have 21 rare disease communities with more to come soon!

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  • Join RareConnect

    Join RareConnect

    Meet and interact with others who share your condition in a supportive and friendly environment. Find the information and support you need and share your own experiences.

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  • Member Story

    Read My healthcare technique…

    My healthcare technique… - Here I will try and present how I take care of my health. First of all I hav... Read more >

    Events

    • 13th Asian Oceanian Congress of Neurology 13th Asian Oceanian Congress of Neurology - The Asian... More >
    • Child Neurology Society Annual Meeting Child Neurology Society Annual Meeting - 41st Annual... More >
    • Canadian CAPS Conference Canadian CAPS Conference - Toronto, Ontario Save t... More >